Cluster headache sufferers are going up to eight years without a diagnosis

Publicly released:
Australia; VIC
Photo by Usman Yousaf on Unsplash
Photo by Usman Yousaf on Unsplash

Delays in diagnosing cluster headaches are leaving people in excruciating pain despite various available treatment options, according to Aussie experts. The experts say cluster headaches can be one of the most painful things a human can experience, and some people experience them multiple times a day over long periods. The experts say there are various treatment options that can act fast when a headache hits, and some that can reduce the frequency of attacks. They say it is important for people who suffer from cluster headaches to seek a diagnosis so they can put together a plan to reduce them as much as possible.

Media release

From: NPS MedicineWise

Cluster headache – empowering people with a treatment plan

A cluster headache – also known as a ‘suicide headache’ – is among the worst pains that can be experienced. In an article in the February edition of Australian Prescriber, neurologist Dr Jason Ray and colleagues from the Department of Neurology, Alfred Hospital in Melbourne review the treatment options. Having a plan for long-term prevention and for managing short-term attacks can really help.

“A person with a cluster headache has attacks of severe pain on one side of their head that last from 15 minutes to 3 hours, up to eight times a day,” says Dr Ray.

“This can go on from a week to a year, or longer, sometimes with gaps of several months between attacks,” he says.

The article divides the management of cluster headaches into short-term, long-term and bridging treatments. Short-term treatment can stop a cluster headache, while onger term treatment prevents them from happening. Bridging treatment aims to control cluster headaches while the prevention starts to work.

“Medicines called triptans can bring fast relief. They are given either as a nose spray or an injection . Breathing in oxygen through a well-fitted mask is another option for non-smokers,” says Dr Ray.

“For most people, a medicine called verapamil can reduce the number of attacks over time. If  you use this medicine, your doctor will regularly check that it isn’t affecting your heart.

“The steroid prednisolone can help while the prevention medicine verapamil is kicking in.

“People are often living with cluster headache for years before they get diagnosed and start treatment. There are effective treatments out there, so it is important to seek help and no longer suffer in silence,” he said.

Read the article in Australian Prescriber.

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Research NPS MedicineWise, Web page The URL will go live after the embargo ends
Journal/
conference:
Australian Prescriber
Research:Paper
Organisation/s: Monash University
Funder: Jason Ray has received compensation from the Pharmaceutical Society of Australia, sponsored by Viatris for educational material. Richard Stark has served on advisory boards for Novartis, Teva, Eli Lilly, Allergan, Lundbeck and has received payment for educational presentations from Allergan, Teva, Eli Lilly and Novartis. Elspeth Hutton has served on advisory boards for Sanofi-Genzyme, Novartis, Teva, Eli Lilly, Allergan, Lundbeck, been involved in clinical trials sponsored by Novartis, Teva, Xalud, Daewong and Novotech, and has received payment for educational presentations from Allergan, Teva, Eli Lilly and Novartis.
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