Under the Trump Administration, US health data collection is faltering

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CC-0. Story by Dr Joe Milton, Australian Science Media Centre
CC-0. Story by Dr Joe Milton, Australian Science Media Centre

An audit of US Centers for Disease Control and Prevention (CDC) public databases by US scientists has found nearly half the federal health surveillance systems have stopped or delayed routine updates in 2025. The gaps in data could undermine clinical guidance, public health policy, and public trust, the authors warn. They reviewed the CDC’s public data catalogue in October 2025, examining 82 listed databases that had previously been updated at least monthly. They then classified whether updates were current or paused, finding that 46% had halted updates, most for more than six months. The majority of paused databases tracked vaccination-related information, while others covered respiratory diseases and drug overdose deaths, they say. When the researchers checked again in December 2025, almost none had resumed updating. Gaps in US health data risk weakening evidence-based decision-making, the authors warn, adding that these databases should have to state reasons for delays, and timelines for resuming data publication.

News release

From: American College of Physicians

Nearly half of CDC surveillance databases have halted updates, raising concerns about health data gaps

An audit of U.S. Centers for Disease Control and Prevention (CDC) public databases found that nearly half of routinely updated federal health surveillance systems had stopped or delayed updates in 2025, raising concerns that gaps in data, particularly on vaccinations and respiratory diseases, could undermine clinical guidance, public health policy, and public trust. The findings are published in Annals of Internal Medicine.

Researchers from Vanderbilt University, University of North Carolina, Chapel Hill, and Boston University School of Law aimed to identify which CDC databases had unexplained pauses in updates and evaluate how common such pauses were among frequently updated CDC databases were. They reviewed the CDC’s public data catalog in October 2025, examining more than 1,300 listed databases and focusing on those that had previously been updated at least monthly. Using each database’s stated update schedule, they classified whether updates were current or paused. Of the 82 databases that met inclusion criteria, 46% had halted updates, most for more than six months. The majority of paused databases tracked vaccination-related information, while others covered respiratory diseases and drug overdose deaths. As of early December 2025, almost none had resumed updating. The authors conclude that prolonged, unexplained pauses in federal health surveillance data risk weakening evidence-based decision-making and recommend minimum transparency standards, including clear status updates, reasons for delays, and timelines for resuming data publication.

In an accompanying editorial, Jeanne Marrazzo, MD, MPH, CEO of the Infectious Disease Society of America, discusses the role of CDC surveillance in the ability to coordinate effective, urgent responses to public health concerns. Dr. Marrazzo notes that without reliable data, the US is not only flying blind in the face of emerging and re-emerging threats to human health and well-being, but also is deprived of effective weaponry.

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Annals of Internal Medicine
Organisation/s: Boston University School of Law, USA
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